About

Raising awareness for the estimated 350 million people worldwide living with a rare disease. My son was born with a rare genetic condition called Potocki Shaffer Syndrome. Through our journey we have met many incredible families effected by different rare diseases and the challenges that we all face day to day can be elevated slightly if awareness was greater. 

Together we can stand united to become a stronger force! 

Half of the proceeds will be donated to Global Genes who work to raise awareness and half will be donated to the incredible UCLA Early Intervention Program who helped my son so immensely we will forever be indebted to them.